Managing HIDS/MKD

Once your child has been diagnosed with Hyperimmunoglobulin D Syndrome / Mevalonate Kinase Deficiency (HIDS/MKD), you should begin working with a doctor on a treatment plan that's right for your child.

Medicines

While there is no cure for HIDS/MKD, your child's doctor may recommend certain medicines to relieve flares and other symptoms.

Over-the-counter medicines

  • Nonsteroidal anti-inflammatory drugs (NSAIDs)

Prescription medicines

  • Colchicine

  • Anti-Tumor Necrosis Factor therapy (Anti-TNFs)

  • Biologics

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ILARIS for HIDS/MKD

One type of biologic is ILARIS®, the only once-monthly biologic medicine that is FDA approved to treat HIDS/MKD. Find out more about ILARIS and how it works to treat HIDS/MKD.

Exercise in Children with HIDS/MKD

Your child's healthcare team may consider adding light exercise to your child's HIDS/MKD treatment plan. Exercise can help keep your child's joints flexible and may even help reduce pain.

In addition to building and keeping confidence in their physical abilities, exercise may also help children with HIDS/MKD by:

  • Keeping joints flexible

  • Building muscle strength

  • Improving fitness

  • Increasing energy

  • Reducing pain

Because physical activity can sometimes trigger a HIDS/MKD flare, it's a good idea to ask a doctor about the types of activities that are best for your child.

Next: Taking ILARIS