Talking to a Doctor about CAPS Talking to a Doctor about CAPS

Talking to Your Child's
Doctor About CAPS

If you think your child might have Cryopyrin-Associated Periodic Syndromes (CAPS), you can start by having a conversation with a doctor. If the doctor suspects that your child might have CAPS, he or she may refer your child to a pediatric rheumatologist.

Before a pediatric rheumatologist can accurately diagnose CAPS, your child will need to complete a physical examination and the doctor will need a complete medical history, including:

  • How long, how often, and when your child has had rash, eye irritations, painful joints and/or muscles, headache, and fatigue

  • Whether these symptoms affect your child's normal activity level

  • Whether there are any other possible causes of symptoms, including an injury or another illness

Record your child's CAPS symptoms and medications
Record your child's CAPS symptoms and medications

Recording your child's CAPS symptoms and medications

Keeping track of your child's CAPS symptoms and medications, and sharing this information with the doctor, will help him or her determine whether your child's CAPS symptoms have changed over time.

Download the symptom tracker Download the Symptom Tracker

Keeping track of your child's CAPS symptoms and medications, and sharing this information with the doctor, will help him or her determine whether your child's CAPS symptoms have changed over time.

Download the symptom tracker Download the symptom tracker

Things to Consider

Things to Consider

Systemic

If you feel overwhelmed when meeting with your child's doctor, consider bringing someone with you who can listen and take notes if necessary

Juvenile

Answer the doctor's questions honestly and directly

Idiopathic

Feel free to talk about your emotions, stress level, or discomfort if these things are affecting you or your family

If your child is diagnosed with CAPS, talk to his or her doctor about ILARIS®, learn what you can, and ask if ILARIS may be right for your child.

Next: Finding Support