What are the Signs and
Symptoms of CAPS?

Cryopyrin-Associated Periodic Syndromes (CAPS) are a group of rare, genetic, autoinflammatory diseases that include FCAS (Familial Cold Autoinflammatory Syndrome) and MWS (Muckle-Wells Syndrome). CAPS are marked by recurrent attacks, also known as flares. Flares can happen at any time and can last anywhere from a few hours to 3 days.

CAPS can cause a wide range of symptoms that can vary from patient to patient. You can use the symptom tracker to keep track of all CAPS symptoms, which may include:

Fever

Fever

Rash

Rash

Headache

Headache

Sore or red eyes

Sore or red eyes

Fatigue

Fatigue

Muscle and/or joint pain

Muscle and/or
joint pain

Only a physician can diagnose CAPS, so be sure to talk to a doctor about all of the signs and symptoms that you or your child are experiencing.

As a caregiver, it may not be easy to recognize all of the symptoms of CAPS. But it's good to have an idea of what certain symptoms, like rash and red or sore eyes, can look like:

Patient with typical CAPS rash.

Patient with typical CAPS rash.

CAPS patient with red eyes

CAPS patient with red eyes.

Children may fail to tell you about their pain, and some begin experiencing this pain so early in life that they actually think their pain is normal. It is important to notice when your child is hurting.

This can be a challenge, especially if your child cannot explain things very well yet. Check for crying, facial expressions, agitation, and level of ability to be consoled. You can also keep track of all of your child's signs and symptoms by using the symptom tracker.

Next: Managing CAPS