FAQ About Active SJIA

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Q.

What is the difference between a localized and a systemic symptom?

Instead of localized symptoms, such as pain in certain joints, systemic symptoms can affect the body as a whole. For example, a systemic symptom of SJIA is fever.

Q.

Why do children get SJIA?

SJIA is idiopathic, which means that no one knows for sure what causes SJIA. It is not passed down to the child, and it occurs equally in males and females. Learn more about your child and SJIA.

Q.

What will happen to my child with SJIA?

The course of SJIA varies from child to child. The disease cycle swings back and forth between symptom-free periods to flares, or times when the symptoms worsen. Some children with SJIA only get one cycle of symptoms, and others will have a chronic course of ups and downs. Learn about SJIA treatment options.

Q.

What is ILARIS?

ILARIS is a prescription medication that is FDA approved to treat active SJIA. ILARIS works by attaching to and blocking interleukin-1β (IL-1β), a type of cytokine responsible for inflammation. ILARIS is given once a month as a subcutaneous injection right below the skin.

Q.

How can ILARIS help with active SJIA?

ILARIS provides fast relief (by day 15) from active SJIA symptoms, improving arthritic symptoms such as painful and/or swollen joints, and systemic symptoms such as fever. In addition, as shown in a clinical study some children receiving ILARIS were able to reduce or stop taking corticosteroids altogether. Talk to your doctor to find out if ILARIS is a treatment option for your child.

Q.

How fast does ILARIS work?

In a clinical study fifteen days after their first dose of ILARIS, approximately 8 of 10 children taking ILARIS experienced improvement in active SJIA symptoms such as fever and painful and/or swollen joints. None of the children taking ILARIS had fever by day 3 after the first dose.

Q.

Is ILARIS given intravenously?

A.

ILARIS is not given as an intravenous infusion (infused inside a vein over a period of 1 or 2 hours). Instead, it is given as a subcutaneous (right under the skin) injection, or shot, once a month by a doctor or nurse.

Q.

Is support available to help pay for ILARIS?

The ILARIS Support Program offers a full range of services to assist in the management of ILARIS therapy, such as:

  • Contacting your insurance company and verifying benefits and coverage
  • If eligible, co-pay and coinsurance assistance
  • Scheduling a home health nurse to give your child his or her injection at home at your doctor's request

Q.

To whom can I speak to if I have more questions about ILARIS?

Talk to your child's pediatric rheumatologist or other healthcare professional. Your child's SJIA treatment team can consist of many important members. Make sure you find a doctor.

If you have questions about the ILARIS Support Program, please call toll-free at 866-972-8315.